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Lizzie is 18 years old and has brittle bone disease. She lives in a wheelchair and loves to spend time with her friends, usually out for a lunch once or twice a week. She lives with her parents and works part-time from home as a writer. Her parents are naturally very protective of her as they have spent the better part of her 18 years trying to protect her from harm. They have seen, better than anyone, the pain and suffering she goes through when she has a new fracture. One of Lizzie’s friends now has a driver’s licence and wants to take her away for an overnight trip out of town to attend a charity ‘fun run’ event. Lizzie’s friend is extremely fit and wants to run five kilometres at the same time as pushing Lizzie in her sports wheelchair. Lizzie’s father has said no. The risks are too high; he will not allow her to go.Lizzie has come to you as one of her trusted support carers and asked you for advice in speaking to her parents to help change their minds.What suggestions can you give to Lizzie that she and her friend can discuss with

Question

Lizzie is 18 years old and has brittle bone disease. She lives in a wheelchair and loves to spend time with her friends, usually out for a lunch once or twice a week. She lives with her parents and works part-time from home as a writer. Her parents are naturally very protective of her as they have spent the better part of her 18 years trying to protect her from harm. They have seen, better than anyone, the pain and suffering she goes through when she has a new fracture. One of Lizzie’s friends now has a driver’s licence and wants to take her away for an overnight trip out of town to attend a charity ‘fun run’ event. Lizzie’s friend is extremely fit and wants to run five kilometres at the same time as pushing Lizzie in her sports wheelchair. Lizzie’s father has said no. The risks are too high; he will not allow her to go.Lizzie has come to you as one of her trusted support carers and asked you for advice in speaking to her parents to help change their minds.What suggestions can you give to Lizzie that she and her friend can discuss with

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Solution

  1. Preparation: Lizzie and her friend should prepare a detailed plan of the trip, including the route, where they will stay, emergency contact numbers, and nearby hospitals or medical facilities. This will show Lizzie's parents that they have thought about potential risks and how to manage them.

  2. Safety Measures: They should discuss the safety measures they will take. For example, her friend could take a first aid course to learn how to handle potential medical emergencies. They could also bring along another friend who can drive as a backup.

  3. Wheelchair Maintenance: They should ensure that Lizzie's sports wheelchair is in good condition and suitable for the trip. They could even consider getting it checked by a professional to reassure her parents.

  4. Communication: They should promise to keep in regular contact with Lizzie's parents during the trip, providing updates and reassurances.

  5. Trial Run: They could suggest doing a shorter, local trip as a trial run to demonstrate that they can handle it.

  6. Emphasize the Benefits: Finally, they should emphasize the benefits of the trip for Lizzie, such as the enjoyment she will get from the event, the chance to be independent, and the positive impact on her mental health.

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